Hello dear friends,
Well, this post has been long-awaited. I keep postponing writing in hope of hearing more news from the doctors so I can better inform you all but then that just keeps you wondering and waiting. Sorry!
On Thursday, April 3rd, my mom was at home and felt a fever coming on. She called her doctor and they admitted her into the hospital ER shortly after. A small thing like a fever for you and me isn't a big deal but for my mom it's serious (due to her white counts still being severely low). It's Tuesday, April 8th, and she's still in the hospital. Her fever continues to spike (as high as 104!) and then drop back to normal multiple times a day. This means that she has some sort of infection in her body but they cannot figure out where it is coming from. They have done countless blood and urine tests but to no avail. She got a CT scan done 2 days ago and the results came back normal. That is great news, for sure! They performed her fourth bone marrow biopsy yesterday and we are awaiting those results today. I think the worst is not knowing. She has had the same symptoms for six days now and as of yet, they have no idea how to treat it. They even sent an Infectious Disease Specialist to look at her. Still no answers....frustrating.
She's a trooper though! She was supposed to start her consolidation round of chemotherapy on Monday (yesterday) but due to this infection they have had to postpone everything. Yesterday I told the nurses to send in a Physical Therapy team to give her a Thera-band and some exercises for her to do so she doesn't just waste away in her bed. Today I had them teach her "fun" exercises that she can do in bed to keep her muscles active. I put "fun" in quotation marks because she doesn't think it's very fun. ;) She kept flashing me her "annoyed eyes" as the physical therapist and I were teaching her exercises and writing up a workout regime. But hey, I guess it's my turn for revenge after all those years she forced me to practice the piano, right? What goes around comes around, Pammy Sue! ;)
We will hopefully hear the results of the bone marrow biopsy later today so I will post the results as soon as I know. In the meantime, please be praying that the doctors will be able to find out what is causing these fevers so that they can treat it and we can move on with her recovery plan. Thank you all for your consistent care and prayers!
Much love to you,
Lindsay
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9 comments:
Man, what a doozy! I have never known a fever that high. Hang in there, Pam! We are praying for wisdom and information. In the mean time, do those exercises :)
Love you guys,
Beth
Thanks for the update - it really helps to know how to pray and we will be praying for them to find this infection so they can fix it!!! June Ann
Pam --
Your fever must have hit soon after we talked. You sounded so wonderful on the phone -- hard to believe how quickly things can change!
My thoughts and prayers continue to be with you through this latest change of pace. This, too, shall pass.
Love & Hugs,
Judy
Oy vey, Pam! Your road has had a few bumps on the way to your destination, huh? Well, He knows where that stinky infection is, so we'll just have to pray for discernment. Hang in there, dear friend! Praying for a loving you... -marianne
Oh dear Pam, I just can't believe this journey you are on! I just got back from 6 days with Jenny helping out with Xochitl and the first thing I did was to go to my computer and see if Lindsay had a new post. Know that Jack and I are praying for you. Thank you to Lindsay for the precise information so that we know exactly how to pray. Please hang in there with all the inner strength that I know you have. We both love you SO much! Patty D.
Sorry for the fevers and frustration of the unknown... we'll pray for answers and were glad to see the great CT scan results. Hang in there and keep exercising!!! You'll be glad later. You'll be healthy and have a great bod to show for it too. : )
Love and prayers to you Pam. I pray that all infections are gone and no more fever. Hang in there and listen to your daughter!!! Stay up on those exercises. Lindsay is right about keeping you active. And yes Lindsay...pay back time is oh so sweet. hee hee
love and hugs,
shana jabusch
Dear Pam,
Lindsay's news was good on one hand and not so good on the other. Darn that fever! We will pray specifically for the cause of the fever to be disclosed. In the meantime, just keep doing those silly exercises. Know that God has a plan... and He won't let you down!! :o)
Hang in there, brave one! You are constantly in my thoughts and on my heart each day. Give that fever the old heave ho!
With love, hugs, smiles, laughter, and hope,
Phyl and Coby xxx/ooo
First of all Lindsay, thank you so much for the update...you truly are precious and yes...Mothers "occassionally" need to listen to their daughters!
Pam...hang in there...just take one moment at a time. Rest and enjoy the TLC that is so easy to give you! I am praying for your fever to just cease and for the Drs. to know exactly what next step to take with your treatment.
Love and hugs sweet friend,
Sherry
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